Amidst the chaos of baseball playoffs, end-of-year concerts, recitals, and field trips – I have been feeling the full weight of our family calendar. Juggling chauffeuring with who needs a bagged lunch while double-checking that the right uniform is clean and the costume pieces are all still where they should be is always a lot. When I get stressed like this, I also tend to notice all the inconsiderate and/or purposefully mean things people say and do.
One of the amazing perks of not working traditional work hours is that once a week Miguel and I try to have a casual lunch date. It’s a small break in the week where we can catch up and discuss things other than the logistics and schedules. Our usual spot is a diner located a short five-minute walk from our house – easy, convenient, and you really can’t beat the food at a good New Jersey diner.
Today marks the 121st day of the year, which, a little calculator math tells me, is also about one third into the year. So, I thought it might be useful to do a little self-check-in to see where I’m at physically, emotionally, and with my goals for the year. You know, instead of waiting until December and making excuses or feeling crappy about wasted opportunities. But also, to see if my goals still serve me.
Tis the season when my non-profit involvement and fundraising gears up. For those unaccustomed with non-profit meetings and fundraisers, the bulk of them tend to occur in the spring and fall. Cue all the committee and board meetings, concerts and speeches. I am writing this from the Undiagnosed Diseases Network Symposium in Boston where I am listening to researchers, clinicians, doctors, and patients share experiences, best practices, and latest technological advancements for the undiagnosed community.
While life has definitely slowed in the Cervantes household there is one member still keeping me rather busy: Anessa. I have hesitated to write much about her recently because she is too young to grant me permission to share about her life. However, I do feel compelled to write about my emotional response to recent news and you will have to forgive any vagueness or generalities.
This time last year I was so overwhelmed with life I asked Miguel to write a blog for me for my birthday. I had recently learned that the lumpectomy to remove my breast cancer had not left me cancer-free and I would need a mastectomy. What a difference a year makes.
In honor of yesterday’s Purple Day, I’m changing up my usual format this week and posting an interview with Dr. Ashlyn Sanders, an awe-inspiring woman who has invented PATI, an FDA approved medical device that is already helping prevent oral injury in epilepsy patients across the country.
Last seen in February lighting a fire under my ass to deliver a killer TEDx talk. No sign or word from her since. I’d offer a reward for any tips to her whereabouts, but my motivation seems to have skipped town alongside her.
If your social media feed looks anything like mine, then you have learned a lot about matriarchy over the last couple of months. In particular, that matriarchy is not just patriarchy with women in charge. It is actually so different I’m not sure I can even imagine how it would look in a modern society – but holy shit would it be awesome to try.
Adelaide has been on my mind a bit more than usual lately. And it might be because of my new comfort show. Bear with me for a moment here, but it’s The Pitt. Perhaps it seems odd that I would find comfort in an arguably anxiety-inducing medical TV show. I get that. However, there are few places I have felt more comfortable than in a hospital.
I have a tendency to put a bit of pressure on myself. Add in a jam packed weekend, missing two of my son’s performances, and delivering a TEDx talk and you can smell the recipe for disaster through your screen. Thankfully, Alysa Liu entered my life through my television screen and I am now officially in my Alysa Liu era.
