Dec 9

Dec 9 He looks so normal

I want to be clarify something after receiving several messages following the release of our “Day in the Life” documentary. Epilepsy sucks a whole freaking lot regardless of specific details. You or your loved one doesn’t have to have seizures every day, week, or month - or to have died from them. Someone with epilepsy can lead an outwardly ‘typical’ life: physically, emotionally, behaviorally, communicatively and the impact is still all-consuming and over-whelming. But my guest blogger this week, Carrie Buck says it much better than me.

Dec 2

Dec 2 A day in the life of Adelaide Grace

Kelly Cervantes

On Monday, CURE Epilepsy will release a short documentary about a day in the life with Adelaide. It focuses mostly on an average morning in our home circa February 2018 – six months before I even started this blog. It is admittedly a challenging watch and includes Adelaide having a seizure, however I think it is important to share this life. To break through the apathy and lead with empathy. This was our normal, our so very not-normal normal - and remains a version of normal for 65 million people living with epilepsy worldwide and that will never be ok.

Nov 18

Nov 18 Battering ram

Kelly Cervantes

And just like that, the holiday season is upon us. No, our tree isn’t up quite yet (this pic is from last year). But if you were taking cues from my social media feed (or my bank account) you would assume that it’s been Black Friday for three weeks already. Alas, it is only just beginning. Thanksgiving is like a battering ram into the holiday season, leaving the barred door to our emotional reserves in splinters. This year, I’m going to try an unobtrusive knock on that door followed by a calm and peaceful enter.

Nov 11

Nov 11 An adoption education

Kelly Cervantes

“At BEST, adoption is a tragedy and not something to be celebrated.”

This was my first experience with an anti-adoption advocate. My gut reaction was instantly defensive. This eventually led to a Reddit rabbit hole and TikTok time suck about the adoptee experience and the ethics of adoption. This was not my first foray into understanding the long-term effects of adoption. But this was the first time I’d heard of adoption being considered altogether unethical.

Nov 4

Nov 4 Cohabitating

Kelly Cervantes

One year ago this week, we learned that a family was breaking apart and that a little girl was in need of a home. Since then, among many other things, I have been learning how to cohabitate in the world we were introduced to with Adelaide and the one we are living in now with Strawbaby. And, well, it’s complicated.

Oct 28

Oct 28 Finding bliss

Kelly Cervantes

An errant elbow to my back jolted me awake. Before adrenaline could rush to every extremity, I remembered bringing Strawbaby into our bed hours earlier after she’d woken from a nightmare. I not so secretly love having her in bed with Miguel and I. Jackson has never been one to ask to sleep in our bed and while I often slept in Adelaide’s bed with her, she rarely slept with us.

Oct 21

Oct 21 Still surviving

Kelly Cervantes

Well, I survived another year of the most difficult Adelaide anniversaries. It was a cumulatively exhausting week and I’m still recovering. Leading up to this hell week I had tried to remain open to any and all emotions: including being ok – and sometimes I was. Except for Monday. Monday was a shit show. Still, I remain in awe how each year these anniversaries hit me differently.

Oct 14

Oct 14 Unexpected gifts

Kelly Cervantes

Jenny and I didn’t grow up together or share debaucherous nights in college. She wasn’t in my wedding or at the birth of my children and we never shared an office. Yet, I feel like I’ve known her forever. Some people come into our lives when we need them most with the exact kind of support we need and looking for the exact kind of compassion we can offer in return.

Oct 7

Oct 7 Relinquish and reclaim

Kelly Cervantes

Once again, Hell week is upon me: the anniversary of Adelaide’s passing on the 12th followed by her birthday on the 17th. This year these dates are hitting a little different as I find myself in, dare I say, a happier and more balanced place in my life. In order to reconcile where I am with where I’ve been I am learning to relinquish and reclaim. Oh, and to make space for grace because this shit is hard.

Sep 30

Sep 30 More

Kelly Cervantes

In honor of CURE Epilepsy’s virtual event, “Unite to CURE Epilepsy” I wanted to share a personal story from our epilepsy community. Tracy Molnar responded to my call for guest blogger submissions, and I am thrilled to share her experience with her daughter, Lemon. Her vulnerable essay is a sincere reminder of what we are fighting for and how important this community is to each other.

Sep 23

Sep 23 Infancy

Kelly Cervantes

I’m always eager for the opportunity to catch up with Chicago friends, so when Wendy told me she was speaking at the Forbes Power Women's Summit in NYC, naturally I invited myself along. I was excited to see Wendy, and at such a star-studded event, though what I took from the day is not what I expected:

1. I am super glad my book doesn’t come out for another year.

2. I have a crush on Bobbi Brown

Sep 16

Sep 16 Sometimes, it's ok

Kelly Cervantes

Sometimes life takes a massive dump right where you are walking and you either step right in the middle of it or somehow manage to skirt it at the last second. Sometimes you can see the steaming pile in front of you a mile away but the guard rails are up and there is no exit ramp in sight. But sometimes – sometimes – the worst doesn’t happen. Sometimes, a collection of moments turns out ok. Maybe even better than ok, maybe they are even beautiful.